For the first year ever PWA have chosen to select a charity of the year, Covid-19 stopped us in our tracks and so as we start the new year we will embark upon our ambitious challenge of raising £20k for
The team at PWA will be taking part in several challenges in 2020/21 to raise much needed funds for The National Tremor Foundation (NTF). We chose this charity as Denene’s sister suffers from Essential tremor and so this is a charity close to all of us here at PWA.
Together we will help raise the profile of this disorder with funds going to help with the development of support groups throughout the country, and to provide finance for research projects ultimately going on to help the 1 million sufferers in the UK!
One of the Biggest challenges for us will be the ‘Ultra Peak District Challenge 2021’ where we will be trekking 100k over the Peak District though there will be many other events going on throughout the year so keep in touch to here about what we are doing or to get involved!
More Info about Essential Tremor…..
Essential tremor (ET) is an uncontrollable shake or tremble of the body and affects around four out of 100 adults over 40 years of age. Some people only have a mild tremor at first, which usually gets more severe over time. Current estimates indicate that there are over 1,000,000 suffers in the UK, 10 times more common that Parkinson’s Disease which but there is not much awareness about
Most people with essential tremor experience a trembling, up-and-down movement of the hands, although others are affected in their arms, head, eyelids, lips and other muscles can also be affected. A tremor in the voice box (larynx) may cause a shaky voice.
Essential tremor is usually more noticeable when you’re trying to hold a position or do something with your hands, such as write. It doesn’t always affect both sides of the body equally.
Denenes Sister, Merane, has struggled with Essential Tremor for about 10 years. At first she hand a mild tremor in her right hand, this has progressed over the years and now effects her arms, torso, more recently her head and legs.
She takes medication which helps, however like so many people the medications are becoming less effective.
The National Tremor Foundation are a very small charity run mostly on volunteers, who have helped Merane greatly with support. She now runs the Leeds Tremor Support Group,Leeds Tremor Assisted Walking Group and have recently set up the Sheffield Support Group.
Most of the people who attend the support group are unable to work due to their condition. Living with tremors makes everyday tasks very difficult, simple tasks such as brushing teeth, eating, drinking and writing are very tricky due to unsteady hands as a result people withdraw from social occasions and become very isolated.
Essential Tremor is one of the most common conditions but uncommonly known. Until attending the support groups, most people have not come across anyone else with the same condition so have just struggled alone.
2020 is an exciting year for the NTF and people with Essential Tremor, as we having a big push on raising awareness to be able to reach out to others and provide more support. Along with working hard to get the NHS to fund a treatment called MRgFUS – MRI guided Focused Ultrasound Treatment which is currently only available privately costing £20,000 a treatment, making our £20,000 target take on real meaning!”